Working - How do you know when to say enough is enough?

How do you know when it's time to throw in the towel?  I mentioned briefly about working and somewhat of the struggles in my Work and Uncertain Times post.  I mean I manage to get through given the job I have.  There is no way I could do a physical demanding job, that required me to be on my feet, or be outdoors, or extensive traveling, etc.  But I do get those moments in my head, you know those thoughts that say... is that time coming, because things aren't getting better.

I have spoken to my husband and he's nervous.  He makes decent money I guess, but we are not exactly debt free.  He does say that if my health required me to stop working, then we would take it as it came but on the other hand tells me to stick it out as long as I can.  What that means to him and what that means to me could mean two different things.  Of course there is the option of disability but really, is that an option?  I've heard so many people that have been denied (and the very long process that has actually put people in bankruptcy going through it)  Even those dying of cancer get denied so while I could hold out hope for disability as an option for me, I can't put all my eggs in that basket.

This has just been on my mind lately, I mean it's not a serious consideration at this point.  Today, it came to mind as I took 30 minutes to peel myself out of bed because my body didn't want to work but yesterday I was enjoying a normal (well normal as normal can be for me) day and besides the pills I take, forgot about my illness for a few times in the day - that was nice, wish I had more like that.

Postural Orthostatic Tachycardia Syndrome

That's a mouthful, and to be honest I can't spell it without looking it up but it's my newest diagnosis add-on to my lovely collection. Yay me! 

This actually brings me back to my lupus diagnosis days, you know how it goes... where you finally know what has been causing you those problems all those times, but wait... I don't want to hear something else is wrong with me, and not another diagnosis... no not another one with no cure.

I found this out last Friday, exactly a week ago today after a lot of testing at the Cardiologist office and I'm still really upset about it.  Maybe I've done too much reading but I've read other people's experiences with it and the heartbreaking stories is just too much for me right now.  I feel like I just barely got over how devastating Lupus is and now this, which can be a debilitating thing all on its own.

I've picked up the phone a couple of times to call my mom but put it down before I could hit the call button.  I hate to tell her anything because she worries about me.  It's hard enough talking to her about my Lupus and I do hold back a lot from her.

Am I making a bigger deal about this than I need to be? Am I being a big baby about this?

For those who are unfamiliar with Postural Orthostatic Tachycardia Syndrome (or P.O.T.S.) or would like more info... source: HospitalSoup http://www.hospitalsoup.com/health-conditions/postural-orthostatic-tachycardia-syndrome-by-dr-blair-grubb/  (edited 9/30 for spelling errors only)